Well, it's finally official. For six years, I've been ill with some sort of auto-immune disease but my doctor could never pinpoint what exactly I had. In 2008, I felt so much better and I quit going to her because whatever it was had gone away and I was FREE!! Until December of 2011 and I fell off the cliff, figuratively speaking of course, LOL!
I went back to rheumatologist and saw the PA this week. I asked about my labs and she said that I still had active lupus.
STILL HAD LUPUS????? WTF??? WHEN HAD I BEEN DIAGNOSED WITH LUPUS?????? I was flabbergasted. I asked her what she meant and she told me that when I came back in December of 2011 that the blood tests showed positive for an indicator of lupus and combined with my other symptoms, they could definitively diagnose me with this.
So the last two visits with my doctor, nothing had been mentioned but I was so disbelieving, the PA showed me in the doctor's notes where it said I had been diagnosed with SLE, not RA as originally discussed nor scleroderma with CREST.
The last couple of days have been a rollercoaster and I'm still dealing with it. I've been angry and weepy. It's really frightening. But really everything makes sense.
So this is my big announcement and a bit of an explanation. I love to be around people and hang out but this disease can take a lot out of me. The way I feel is often too complex to describe and it can change from day to day. But I've often used The Spoon Theory in explaining how I've felt and all too often, I've borrowed spoons from the next day.
So if I bow out of anything, I apologize in advance. I make plans and then have to break them because I'm so sick. Today, I'm running a fever and my joints ache. So ask me today and I don't feel like doing anything. But next week is different and I hope I feel better :)